Last night was the worst night I have had since being diagnosed with MS. My injection sites on Wednesday’s are my left arm. This spot is the one that hurts the most to do my shots. Reuben has tried doing it in different spots to try and see if we can find a place where it won’t hurt as much.
We put the kids to bed and then it was time for my shot. Reuben cleaned the area with an alcohol swab and then squeezed the skin on the back of my arm. I felt the prick when he put in the needle which hurt a little, but then when he started squeezing in the medicine I knew something wasn’t right. I felt a sharp pain in my tricep/bicep and then it traveled down to my forearm. I started wiggling my arm, but Reuben told me he wasn’t done suppressing the syringe and there was still medicine left in it. I told him something is not right and it was really hurting. He quickly squeezed the rest of the medicine in my arm and took the needle out. I grabbed my upper arm with my right hand and started rubbing it. It felt like something was stretching the muscles in my arm out to the point where they couldn’t be tensed any further. Reuben left the bathroom to go and turn the sprinklers off outside. I couldn’t stand any longer so I sat down on the toilet and felt the tears springing into my eyes. All I kept thinking to myself is, this isn’t right. I have never had this feeling before when I do my injections.
I heard Ayden get out of bed which he frequently does to use the bathroom after we put him to bed. I heard the toilet flush from his bathroom and I wiped my eyes to hide my tears as he came into our bathroom. He saw me rubbing my arm and said, “Mom, what’s wrong?” I told him that I was OK and that it was time for him to go back to bed. He walked away and I looked down at my arm. You could see my bicep pulsing beneath my skin and the pain was getting worse. I started crying again and then went to find Reuben because I didn’t know what to do. I met him in the living room and sat back down on the couch sobbing in his arms. He got me an ice pack because this seemed to help with my arms in the past. It wasn’t working. Nothing was working and I could feel the pain all the way down my arm into my left hand which was now numb.
I was crying because of the pain in my arm, but I was also crying because I am not sure how much longer I can do this for. This was the worst night that I have experienced since being diagnosed with MS. I could feel Reuben start to hold me tighter and he was now crying as well. We sat there for a few minutes trying to soothe each other. I am sure he felt bad because he was the one that did the injection. I told him that it wasn’t his fault and that I was going to be OK.
A few minutes passed and we went to lay down in bed together. I went into Ayden’s room to reassure him that Mommy was OK. He hugged me and laid back down to sleep. I continued to hold the ice pack on my arm and the pulsing in my muscle finally stopped. The pain was still there and I felt myself holding my breath. I needed to see if I could take something to make this throbbing in my arm stop so I got up to get some ibuprofen. I took that and the pain was tolerable a half hour later.
We read our devotional and it was time to fall asleep. I normally sleep on my left side, but my arm was so tender I had to lie on my back. I slept well and when I woke up this morning the pain in my arm was all gone. Now it is just stiff and it is hard for me to lift heavy things with it. It is the same feeling the day after you get a tetanus shot. It is stiff and achy. I am not sure if I will be doing the injections in my left arm any longer.
My neurologist just called and cancelled my appointment that I had for today because he is ill. His next available appointment won’t be until May 25th!!! Getting an appointment with this doctor takes forever. I took an appointment with his physician’s assistant on May 15th. The receptionist told me the PA will do the majority of the appointment and my neurologist will be in with me for just a few minutes. Right now I will take what I can get. I need my questions answered!!
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