Weekend Wonders. . .

 

When I was in college I did a long paper on invisible disabilities.  Who would ever think that I would have one of the most common diseases that cause an array of symptoms or flare ups that the person next to me cannot see.  When I share with people for the first time that I have MS the most common thing they say to me is, "WOW!  You look great though." 
I wonder what MS looks like if I look great to others.  Is it because I am not in a wheelchair yet or because I can still speak and see clearly. 
I wonder if I look as great on the inside some days.  When it comes to the end of my day I can feel the separate departments in my body shutting down one by one.  If I have a busy day, especially if that includes fresh air, it happens to me sooner in the day.  It is so hard when you have little ones that just want to be outside all day long.  I am a busy body and I like to do as much as I can on the weekends.  I don't like to sit around and relax because then it feels like a waste of a weekend. 
However, I can feel this catching up with me when Sunday rolls around and it feels like a chore to get dinner on the table in the evening. 



For now, and as long as I can, I will take the compliment,  "WOW! You look great though", and smile because tomorrow is a new day.

P.S. The other day I was giving myself my injection in my stomach and Ayden was watching me, He asked me, "Mom, does that hurt?" I was honest with him and I told him that yes it did sting a little. I let him hold the clippers that I clip the needle off with when I am done so he feels like he is a "Helper" and he looked up at me and said, "Mom, when I get bigger I am going to get to do that too!" He always wants to do things that his dad and I get to do because we are 'bigger". I smiled at him and told him, "I really hope not buddy. My hope is that when you get bigger I wont have to do these shots anymore either."